hi all! hope all is well, just an update on ian. his speech and cognitive capabilities have been improving but his behaviour has been...declining. he has 2 different kinds of episodes/behaviour - and they have been increasing in frequency and duration. we saw the pediatrician today, solely for this. we had been taking videos so we could show him the behaviour, but ian went into one of the episodes right in his office today. there is concern - and we will be having another eeg done as soon as we can get an appointment. we have a casa assessment next week - a psychiatric preschool assessment of sorts...its a number of hours, and they specialize more in regulatory disorders (which ians gastroenterologist and pediatrican think is 1 possibility); and we're waiting to get into the glenrose for a pas assessment (which is usually more for autism specturm disorder, which ian's pediatrician thinks is another possiblity) as well (have been waiting since he was 3...he has been referred by 4-5 different specialists, but it is hard to get in. they cover the territories, northern bc, and I think northern alberta and northern Saskatchewan). I have spoken with the director a couple times and I don't know if its political stuff or what....but ians pediatrician is not very happy with them. I called the director myself again today, and I went over some info with her and she asked who ian's pediatrician was...and she sighed and knew him. by name. she said he is a good pediatrician (though a pain in the butt for her), and that he will probably call her today about ian. she says he is good, follows up, and if they miss anything he usually reminds them. it made me more thankful to realize that we do have a good pediatrician, who isn't scared to bug people a bit:) that is not to say that ian has any of these...but his behaviour is alarming. and his behaviour isn't consistent. some of the glenrose assessments have shown 2 different sides of ian and his behaviour. at the feeding and swallowing clinic the psychiatrist thought strongly for autism spectrum disorder because he wouldn't make eye contact, did not initiate or play with keira, and had strong tactile aversions. then the physical medicine clinic sees him smiling and interactive. dr. harris (pediatrician) saw both sides today, so that was nice, or not nice. :) anyways, I think I have some of my jargon or terms mixed up...but I just wanted to share an update. a couple months ago ian had some more seizures, but they appeared to be more of a febrile seizure...the last eeg we had was normal. he has improved in a lot of ways which we are thankful for! bowel movements and sleep are still elusive, but it is awesome to see ian understanding and communicating more! we are loving it:) we have been referred twice to the stollery sleep clinic, but that is the least priority of appts for me, since they weren't able to help with keira, and discussing this with the ped dr. today, we will put that on the back burner for now. hope all is well for everyone:) that you are having a beautiful spring - it is lush and green here! love it:) luv us, the van g's